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For Medical Professionals

Informing families of a new Down syndrome diagnosis need not be intimidating, insensitive or non-positive.  The Utah Down Syndrome Foundation strongly believes the positive news of a Down syndrome diagnosis is key to the necessary coping for new families.  We encourage all medical professionals to refer to  "Discussing Down Syndrome, A Physician's Guide" prior to giving a Down syndrome diagnosis to new famiies. This guide has been published by the Utah Down Syndrome Foundation to help assist physicians facing the challenge of informing parents that a newborn or unborn child has or may have Down syndrome. 
 
Medical professionals are also encouraged to learn the Myths vs Truths of Down Syndrome, and practice using People First Language when speaking of or writing about an individual with a disability.  
 
The National Down Syndrome Society (NDSS) has published healthcare guidelines by age range for individuals with Down syndrome.  These guidelines can be downloaded as PDF documents through this list of links:
 

The IDD Toolkit is a website devoted to information for the primary care of adults with intellectual and developmental disabilities (IDD). It offers health care providers best-practice tools and a wealth of information regarding specific medical and behavioral concerns of adults with IDD, including resources for patients and families.

Below is additional information about common health conditions that often accompany a Down syndrome diagnosis:

Nutrition and Feeding Related Concerns - A presentation given by Lindsey Thompson MS, RD, of the Children's Mercy Hospitals & Clinics. 

Obstructive Sleep Apnea - A presentation given by Dr. Dennis Rosen, M.D. of the Division of Respiratory Diseases at the Children's Hospital Boston.

Dual Diagnosis: Down Syndrome and Autism - Information from the NDSS website about Down syndrome with Autism. 

Ear, Nose & Throat Issues and Down Syndrome - Important information about the common ENT conditions associated with a Down syndrome diagnosis.

All other Associated Conditions common with Down syndrome, and important medical information for each.

If you are a medical professional and would like to schedule a hospital inservice or office visit to receive training about how to handle and communicate a new Down syndrome diagnosis, please send an email to info@udsf.org.