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Helpful Links

LOCAL SUPPORT

  • Disability Law Center  Their mission:  To enforce and strengthen laws that protect the opportunities, choices and legal rights of people with disabilities in Utah. 
  • Utah Developmental Disabilities Council (UDDC)  The mission of the Utah DD Council is to be the state's leading source of critical innovative, and progressive information, advocacy, leadership and collaboration to enhance the lives of individuals with developmental disabilities.
  • The Legislative Coalition for People with Disabilities (LCPD) The Coalition advocates for public policy affecting all people in Utah who have disabilities. Membership is open to all and is comprised of voting and non-voting members. The Coalition is incorporated as a private, non-profit 501(c)3 organization in the state of Utah.
  • Utah Parent Center   The Utah Parent Center is an award-winning training and information center founded in 1983 by parents of children and youth with all disabilities to help other parents facing similar challenges throughout Utah. The caring and competent staff of the UPC utilizes a proven, effective parent-to-parent model to help many thousands of parents annually.  UPC staff has built collaborative networks with education, health and human service professionals, agencies and organizations. The Center promotes change within community through various projects and activities. Located in Salt Lake City, the Center serves families across Utah.  The UPC is founded on the philosophy that parents are full partners in the decision-making processes that direct their child’s care and programs and, as such, can provide significant support to other parents in similar circumstances.

NATIONAL & INTERNATIONAL SUPPORT

  • National Down Syndrome Congress (NDSC) Here is where you will find the most important information on Down syndrome – facts, concepts and philosophies that all who are concerned about people with Down syndrome need to know and use. That includes our New Parent Package; a collection of materials refined over years to provide new and expectant parents with an initial understanding of the challenges – and joys – of raising a child with Down syndrome. You will also find a wide array of current, expert articles, recommended reading and answers to the most frequently asked questions regarding Down syndrome. If you need further information, please contact the NDSC Center by calling, toll-free, 1-800-232-NDSC or sending email to info@NDSCcenter.org.      
  • National Down Syndrome Society (NDSS) The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The Buddy Walk® was established in 1995 by the National Down Syndrome Society to celebrate Down syndrome and to promote acceptance and inclusion of people with Down syndrome.
  • International Down Syndrome Coalition (IDSC) The International Down Syndrome Coalition is dedicated to globally acknowledging and promoting the dignity, respect, and rights to all individuals who have Down syndrome.  Each year on March 21 the IDSC celebrates World Down Syndrome Day.  The day was chosen to represent the third copy of chromosome 21, which is unique to individuals with Down syndrome, hence the date 3-21.
  • National Association for Down Syndrome (NADS) This is the oldest organization in the country serving individuals with Down syndrome.  Their mission is to ensure that all persons with Down syndrome have the opportunity to achieve their potential in all aspects of community life.  

RECREATION OPPORTUNITIES

  • Salt Lake City Park and Recreation  This organization provides a variety of sports and recreational activities for people with Down syndrome and other disabilities.  
  • National Ability Center An organization located in Park City that empowers individuals of all abilities by building self-esteem, confidence and lifetime skills through sport, recreation and educational programs.
  • Utah Special Olympics An organization made of passionate, committed individuals from every walk of life, who recognize the value and unique gifts of people with intellectual disabilities.
  • Camp K A camp run by the Kostopulos Dream Foundation, an organization dedicated to improving the lives of people with disabilities through the medium of recreation and leisure education.

EDUCATIONAL SUPPORT

  • Down Syndrome Guild of Greater Kansas City - An internationally renowned non-profit organization that serves individuals with Down syndrome and their families. Their website is filled with information and resources about Down syndrome.
  • SpecialED Post - A website posting news and uplifting articles for the special education community.  Sign up for their e-news for up-to-date article postings and news.