About the Utah Down Syndrome Foundation
Established in 1977, the Utah Down Syndrome Foundation (UDSF) is a 501 (c)(3) nonprofit that has since become Utah's largest support provider for the Down syndrome population. For the past 46 years, UDSF has had a growth mindset, meaning that it has the desire to not merely exist, but to thrive. Each year UDSF determines goals that support its mission and help not only the foundation to reach higher levels of achievement, but that will "Love. Lift. Launch." the members of its community as well.
"Providing hope to individuals, their families and community through support, education, activities, outreach and advocacy."
* Provide support to new parents who receive a Down syndrome diagnosis prenatally and after birth through our New Parent Outreach Program.
* This program delivers newborn care packages filled with educational materials for the parents and gifts for the baby.
* This program offers quarterly New Parent Breakfasts that provide education, outreach, and support to expectant parents, new parents, and grandparents.
* This program also includes the latest New & Expectant Parent Resource Guide. A guide filled with information and resources for our new families.
*Medical providers and hospitals can order the New & Expectant Parent Resource Guide, free of charge to give to their patients after receiving a Down Syndrome diagnosis.
* Present essential educational, medical, and support resources to the Down syndrome community through UDSF's website and monthly newsletter.
* Help parents navigate Down syndrome through our Down to Learn Classes and Finance Workshops.
* Teach elementary students about Down syndrome and inclusion using UDSF's Peer Presentation Tool Kits.
* Provide hope and support to families that have a child with Down syndrome through quarterly community activities throughout Utah.
* Offer monthly activities for adults and teens with Down syndrome that promote connection and friendship.
* Sponsor statewide Mighty Steps for Down Syndrome Walks, World Down Syndrome Day celebrations, Lagoon Day, and an annual Easter Egg Hunt to help families connect.
* Promote community outreach across the state through our Community Group Program and social media platforms.
* Provide financial support and outreach to parents who experience long hospital stays with their child, through UDSF's Hospital Meal Reimbursement Program.
* Increase public awareness and education in our communities by collaborating with state agencies, medical professionals, news agencies, and local universities.
* Write letters of support and grants for research projects that advocate for Down syndrome.
* Invite the UDSF community to participate in research surveys and studies that benefit and advocate for Down syndrome.